I had heard the name 'Tuesday O'hara' from my children who went to school with her, in the newspaper reports of charity events, and the sad announcement of her death. It was one of those names that you hear, you recognise, and maybe take some interest in.
That changed in January 2009, when my son Rob, then 21 years old, was diagnosed with Acute Myeloid Leukaemia.
From then on the Tuesday O'hara Fund, Tuesday, Sue and Frank, became part of our lives.
Right from day one of his diagnosis Rob spent long periods of time in hospital. For much of this time he felt quite well, but frustrated at being stuck in hospital with day time TV! The charity very kindly presented Rob with a Playstation 3 and a game, to keep him occupied and take his mind of his treatment, both in Eastbourne and when he had to spend lonely weeks in Kings Hospital, and the Royal Free Hospital in London.
As a family we became involved in attending charity events, the first one being the Halloween Tuesday's Terrorthon, which was sadly to be our last night out together.
Sue and Frank were also very supportive on a personal basis, always there for a chat (which usually ended in tears) or with advice, and provided us with information on Leukaemia, and other charities and funds.
Always aware that Leukaemia affects the whole family, Sue and Frank also gave us tickets for myself and my two youngest children to go to Lapland UK; as I had had to spend so much time with Rob, they were being virtually neglected!
Rob had an unsuccessful stem cell transplant in September 2009, and had started preparation for a trial treatment in December, but sadly he passed away on 29th December 2009, having being allowed home for Christmas.
Sue and Frank were there again with support, recommending a caring, sensitive funeral director, and a £500 donation towards the costs.
Since Rob's death we as a family have become more involved with the charity, attending events and trying to give back.
Leukaemia took Rob. The Tuesday O'Hara fund, Sue, and Frank, helped make that time a little easier, knowing they do understand, they do care, and though it doesn't take the worry, the despair or the pain away completely, it just helps to know they are there, that because of them, people like Tuesday and Rob will not be forgotten.